-A curious adult from Indiana
I can understand your concern...a genetic disease diagnosis can be a scary thing, especially for your kids. If your son does have segmental NF (more about that later), it would be useful for him to know this for when he wants to have children. Fortunately, segmental NF is usually not dangerous in itself. But, there is a chance that your son could pass the more serious, full NF, down to his kids.